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Diabetes and RA Options
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Angiecha
#21 Posted : Monday, March 17, 2014 1:30:56 PM Quote
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Sounds a sensible approach to me. Glad it wasn't a high reading!
Angie
Be yourself - everyone else is taken. XX
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jewelsh
#22 Posted : Monday, March 17, 2014 1:59:57 PM Quote
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That's good news Hoping for the best in three months time then Paul and wishing you success this time in reducing the steroids

Julie
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suzanne_p
#23 Posted : Monday, March 17, 2014 4:56:25 PM Quote
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yes good news indeed Paul,

hopefully with the steroid reduction should go back to normal,

Suzanne
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Paul Barrett
#24 Posted : Thursday, March 20, 2014 4:18:55 PM Quote
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Saw my rheumy nurse today. Basically she says the priority is to get off the steroids but slowly. If, at any stage of reduction, I feel symptoms I should hold at that dose until they fade before continuing with the reduction.

This is going to be a long. A year at best if I do not slow down any step. A year++ if I have to stick at any levels.

Man oh man..........

The good news is I am getting shared care with my GP who will prescribe my meds going forwards, thus taking one complication out of the equation.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
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suzanne_p
#25 Posted : Thursday, March 20, 2014 8:01:19 PM Quote
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hi Paul,

yes that is a long time.

it's a shame you're in this cycle where you can't be put forward for Humira as of yet,

although i know of course steroids would have to still be gradually reduced. wonder if steroids are given as a matter of course in some area's/hospitals, they never entered the equation when i was newly diagnosed and i had a very high DAS Score with CRP/ESR high levels.

great that your GP has shared care, wonderful that you can go to him/her directly.

Suzanne
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Paul Barrett
#26 Posted : Thursday, March 20, 2014 10:10:16 PM Quote
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suzanne_p wrote:
... when i was newly diagnosed and i had a very high DAS Score with CRP/ESR high levels.
Suzanne


I always fail those tests because my joints are not impacted and my ESR is low even in flares.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
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